Who Cares?

Aging on the Sunshine Coast

Timeline

June 2022 – June 2025

HDL Team

Caylee Raber
Jon Hannan
Nadia Beyzaei
Otilia Spantulescu
Maria Azam
Chelsea Burke
Nada Salama
Logan Wilkinson
Jessica Ruffolo
Kyla Zwack

Partners

Deer Crossing the Art Farm
Douglas College

Funders

College and Community Social Innovation Fund Grants - NSERC
Canada Council for the Arts

How can we foster a culture of community care on the Sunshine Coast based on emergent strategies through arts-based co-design processes?

Who Cares? is a three-year, community-based research and arts initiative that brings together The Health Design Lab, Douglas College, and Deer Crossing The Art Farm. Set in the rural context of the Sunshine Coast, British Columbia, this collaboration explores how communities can foster and sustain a culture of care, especially in the face of increasing challenges posed by an aging population and an overstretched healthcare system. With the persistent limitations of traditional institutional elder care, growing issues of social isolation and loneliness among elders, and the severe impacts of the COVID-19 pandemic, there is a need to develop new approaches that reimagine the possibilities for how we live and care with our elders. 

Who Cares? responds to these complex issues by investigating how care is understood, practiced, and experienced across generations and community spaces. Utilizing arts-based, participatory co-design methods, and grounded in principles of emergent strategy, the project asks: How can we create the conditions for new possibilities of care to emerge, and how do we nurture them as a community?

Through cycles of listening, storytelling, and sharing, the project has unearthed both assets and challenges within the community: from stories of resilience and mutual support, to barriers created by systemic inequities. Who Cares? affirms that care is not solely the domain of institutions: it is also a shared, creative, and communal practice that belongs to all of us.

Research Questions

  • What is the lived experience of aging on the Sunshine Coast? 
  • What is the context of aging on the Sunshine Coast? 
  • How does the Sunshine Coast community define care, and where does it occur? 
  • What are the structural and systemic barriers to aging well on the Sunshine Coast? 

Engagement Approach

Over the course of this project, we held pop–up events at farmers markets, coffee shops and malls to gather inter-generational perspectives on aging from the Sunshine Coast community. We also held workshops in spaces where elders typically gather such as local senior centres and long-term care homes. We used participatory design methods focused on making and storytelling to facilitate dialogue and gather insights. Each engagement created conversations and relationships that lead to the emergence of the next set of activities. The engagements moved stories from person to person, gaining new insights and perspectives that added to a collective story built over time.

While working on this project, through a process of reflection and iteration, The Who Cares? team developed a framework for social change that describes key elements of our unique approach. This approach is informed by our multidisciplinary backgrounds in community-based participatory research, participatory co-design and community-engaged arts, and inspired by Adrienne Maree Brown’s Principles of Emergent Strategy.

The role of a Community Connector was vital to our engagement approach. At its core, the role of the Who Cares? Community Connector was to build connections (through casual conversations, phone interviews, and prior relationships) within the community that would enable our team to discover where elders tend to gather, find connection points for purposes of engagement, listen to the experiences and wisdom of those already working with elders and, together, build a picture of aging on the Coast. 

Throughout her role, the Who Cares? Community Connector, Shannon Rody, kept a research journal discussing the hundreds of stories, concerns and ideas she heard from residents of the Sunshine Coast. The following is a page from a fictionalized recounting of a few of the real conversations Shannon had, illustrated by Jessica Ruffolo. You can read the full comic in the Who Cares? Publication.

Knowledge Sharing

A key element of the Who Cares? project is sharing our process, as well as our data, back with the community. Here are some of the ways we’ve done this:

  • Community engagements: creative workshops that encouraged participants to engage with data we had collected.
  • Listening Tree: a large–scale installation that moved around the Sunshine Coast over several months, gathering and sharing stories from individuals about their perspective on aging.
  • Public Events: Upon completion of the project a large event was held for everyone on the Sunshine Coast that shared and celebrated all the work the team and the community had done for the project.
  • Academic Conferences: Members of our project team presented at the C2UExpo2025 at MacEwan University in Edmonton, AB.
  • Publication: Who Cares? published a book that dives into our process and shares an overview of the data collected from the past three years. The full publication is free to view online on the Who Cares? Website.

    By reading the final publication, we hope that individuals and organizations takeaway: 

    • A clear picture of the experience of aging on the Sunshine Coast revealing needs and existing networks of care.
    • A renewed sense of agency and purpose that elder care is a shared community responsibility. 
    • An appreciation for the role of a community connector in elder care that prioritizes relationship building. 
    • A commitment by local organizations, health authorities, and communities to use creativity, storytelling and relationship building to foster systems change.

    Additional information about the project can be found on our dedicated project website.

Travelling tree seeds enhanced elder support on the Sunshine Coast - Coast Reporter

Project Publication: Who Cares? Cultivating a Culture of Community Care on the Sunshine Coast - Digital Publication

Sunshine Coast elder care project uses art to ask who cares - Coast Reporter

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